September is FASD Awareness Month, a time to build understanding, raise awareness, and recognize the experiences of individuals and families living with Fetal Alcohol Spectrum Disorder (FASD).
When navigating an FASD diagnosis, finding reliable information and meaningful support can feel overwhelming. That’s why we invited families with lived experience to share the resources that have made a difference in their journeys.
This curated collection brings together organizations, websites, programs, and tools that families have accessed, trusted, and found helpful along the way. Whether you’re looking for information, community connections, advocacy support, or practical resources, we hope this family-informed list helps you find what you need and reminds you that you’re not alone.
Looking to learn more about FASD? Our What is FASD? infographic highlights key information about FASD, including diagnosis and support, caregiver experiences, and the role we can all play in building understanding, reducing stigma, and creating more supportive communities.
Resources Shared by Families
1. FASD Ontario
FASD Ontario is a government-funded, bilingual one-stop shop for reliable and up-to-date information about FASD in Ontario. The website connects families with resources across the province, including FASD Service Coordinators, diagnostic clinics, and PCMH and other FASD support groups.
2. Partners for Planning
Partners for Planning (P4P) is a national non-profit organization that supports people with developmental disabilities and their families to proactively plan for the future. Its trusted resources cover income security and poverty reduction, personal support networks, innovative housing solutions, legal planning considerations, and meaningful community participation.
3. Caregiver Connection - Parents and Caregivers for Mental Health
Parents and Caregivers for Mental Health (PCMH) offers three FASD Caregiver Connection groups: FASD Ontario, FASD Thunder Bay, and FASD London. These groups provide opportunities for parents and caregivers supporting individuals with FASD to connect virtually and in person with others with lived experience, share experiences and resources, and find peer support.
4. Interwoven Connections
Interwoven Connections provides education, advocacy, and community for families connected through adoption, kinship, and customary care, as well as families at risk of breakdown because of complex needs and the professionals who support them. Resources for children, teens, and caregivers cover FASD and related topics, including Aggression towards Family/Caregivers in Childhood & Adolescence (AFCCA).
5. TIPS for Parents & Caregivers
TIPS for Parents & Caregivers is a resource designed to help parents and caregivers learn about FASD. It provides practical strategies for supporting individuals with FASD in their everyday lives.
6. FASD Understanding
FASD Understanding is a national video and education initiative that uses puppets and storytelling to increase awareness and understanding of FASD. Its resources aim to reduce stigma and build stronger communities of support for individuals with FASD and their families.
7. Canada FASD Research Network
The Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) is a collaborative, interdisciplinary network of researchers, partners, and collaborators from across Canada. Its Tools and Resources section includes many free FASD resources, while courses offered through the website are fee-based.
8. Provincial Outreach Program for Fetal Alcohol Spectrum Disorder
Based in British Columbia and funded by the province’s Ministry of Education, POPFASD shares current research, ideas, strategies, training, and resources to build capacity in school districts supporting students with FASD and their teachers. While some components are specific to B.C. educators, many of its resources and learning tools are available free to everyone.
9. Edmonton and Area Fetal Alcohol Network
The Edmonton and Area Fetal Alcohol Network is a non-profit organization providing community-driven services across the lifespan for FASD prevention, assessment, and intervention, as well as supports for individuals and caregivers. Its website also offers free resources for caregivers and educators.
Visit Edmonton and Area Fetal Alcohol Network
10. Reframe the Behaviour
Reframe the Behaviour is a simple, informative visual resource that helps caregivers and others reassess a young person’s behaviour through a greater understanding of FASD. It encourages a shift in perspective when considering behaviour and the support a young person may need.
Looking for more FASD resources?
Explore our ever-growing Trusted Resources Hub for the latest webinars, resources, and supports.
0 Comments